Thursday, November 29, 2007

Photo Sharing and Video Hosting at Photobucket Bumfuddled

Every once in a while we have a day that causes me to remember that we were told Zander was an alphabet child – and he is. Most days we sort of sail along and I forget. Earlier in the week I read on Dorothy’s blog about research she has done and her experience with her daughter in regards to social humor. Dorothy shares the classic “Triad of Impairments” of Austism/Asperger’s Syndrome is:

*Difficulty with social communication
*Difficulty with social interaction
*Difficulty with social imagination

I read it and thought to myself that I could see Zander in a couple of those bullets. Sometimes stronger than others. I also thought that most of us could probably see ourselves in the bullet statements from time to time...but really Zander does consistently have a harder time in social settings than he does at home or with folks that he really knows well.

Mike and I have wondered at times what sets Zander off. He reaches a point where he simply explodes and runs off to his room…..often when we’re having FUN and laughing. Today I accidentally buried him under a load of laundry taken fresh from the dryer. I didn’t see him on the couch and dumped the laundry on him. Nolan and I laughed.

Zander had a giant melt down. He fixated on this one event for most of the day. He told me that I had driven him to run away. He told me that no one in this family liked him much. At lunch he burst into tears and told me that he was “eating his last meal here and then he’d hit the outlaw trail.” He informed me that he was no longer “Alex the little boy” but was going to forever be “Alex the Outlaw.”

I quickly went back to Dorothy’s blog and printed the entry “A Reluctant Tourist in the Land of Laughter”. She shares how she and her family have taught her daughter humor….and it encouraged me.

I prayed.

I was encouraged when Trish wrote me and told me basically “you’re going to make it, you’re looking for the answers for Zander and God will show them to you”. She also reminded me of all that Zander has had to deal with this week. She mused as to what might be causing him to overreact….I wonder if the noise of our laughter just sets him off….sudden laughing really. Anyway, I was encouraged.

I distracted him by turning on Play Station. I now realize that he is NOT talking about the “stupid fake tooth” since being buried alive in laundry…so all in all it is good it happened. ::snort::

….but it’s been an exhausting day.
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10 comments:

berrypatch said...

I'm sorry to hear about Zander's reaction, but I would have laughed too! I'm just realizing that my 11 year old will sometimes react this way as well. I think something that has happened is funny. He's NOT amused at all. He has some of those "issues" but typically very, very minor. Something more to think on.

Lisa in Jax said...

I'll be praying for this guy. I was much like this as a child.

Michelle said...

{{{{{De'Etta}}}}} I'm praying for all moms who had a difficult day today.

Anonymous said...

Mine will do this when they have a need they don't know how to express verbally. Usually after the worst of the bluster is over they'll permit a cuddle and as we talk the real thing that's bothering them will come out.

Romany said...

(((((((DeEtta))))))))

It *IS* such hard work living with someone who does not react the same way as the rest of the family to humourous situations.

Outsiders can sometimes mistake their reactions as an overblown sense of self-importance or something, but this is to badly underestimate the seriousness of the issues the ASD child is trying to cope with.

Grace hated to be laughed at too. Because there was so much she didn't understand about PEOPLE, she always assumed that she had done something *wrong* to illicit the laughter. So, her anger was mixed up with shame and embarassment and guilt and confusion. How horrible for her.

I wonder if you could start working on humour by finding out from him what makes him laugh and building from there. Maybe encourage the other children to find out too and spend time trying to tickle his own particular funny bone?

Unknown said...

De'Etta,
I recently shared on my blog that our 12 year old son was diagnosed w/ ADHD and NLD.
I had never heard of NLD before but as I researched I learned NLD is much like Asperger's.
This diagnosis explains so much of our sons little "quirks." Zander sounds sooooo much like our son.
I will be praying.
We have been consumed w/ trying to find help for him. It's been overwhelming at times for me, but my trust is in Him who made this wonderful child.
Love,
Laura

Anonymous said...

Sis & friends:

My heart is glad to see parents with challenged kids working so lovingly with them. Go for it ladies, I'll be praying for you all daily as I go about my work and pray for situations I find myself in....I promise I pray for you all too.

In my work in a local high school I work all day with kids whose parents only want to get them out of the house because they don't know what to do.

It is a challenge, even when working just the school days with kids having such needs and issues, I can only imaging how much prayer you all need living 24/7 trying to do for you kids. All your children are so blessed to have parents who care and who have the Lord to depend on. PTL! for all of you!

Laughter, touching, looking at them, noise etc are major things our kids have to deal with daily in school.


SO! love/prayers to you and for you all

Romany said...

DeEtta's Mom,

Thanks for your kind words and prayers. I was feeling quite low last night, with some worries about my dd and then I read your comment. I can't tell you how much your words meant.

DeEtta @ Courageous Joy said...

Ah Mom - thanks for your words.

Ladies, my mom works with severealy autistic children in the public school system. They do have a great program and I know that she ministers greatly to the "children" (high school) and families. On top of all that when we were told Zander was on the spectrum - probably Aspies...never once has she said "Nah - you just need to discipline him more" or "no, he doesn't really have a problem." Our problems seem to be mild at this point but it's so wonderful to know that Mom is supportive and praying.....and now she's praying for all of y'all too.

I can share. Love you mom.

Cynthia said...

I have no experience at all in this area, but just wanted to say we'll be praying for you to find creative ways to work with Zander.