We discovered the local medical board looked at the diagnosis on the record and, by regs, Michael should face a medical board. Rather than send the records up the chain, they decided to do a RILO (Retire in Lieu of).
Now we have answers. Some humorous, some sad. All of it hard, I'm sure it will get easier as we live with this reality a day at a time.
Concrete changes - we hope the meds will help Michael feel better. Yesterday was a bad day...stiff, stumbling, off balance and sort of "motion sick."
I am probably going to have to learn how to pull a 31 foot, squirrely trailer - Lord have MERCY.
My eyes leak at odd times - because really no one envisions their golden years with an incurable condition. And I am not a care giver type - we have lots of jokes about THIS aspect of the whole thing. I actually look forward to seeing the work God does in me through this.
We had PLANNED to full time RV at about 70 - after missions. Our plan was to visit our kids and bless them - to be the Happy Wanderers. This is a dream we've had. Circumstances allow us to live this dream NOW-and we are determined to live fully present. We ARE learning about the implications of this disease, but we are striving for a balance of preparing for what may well come - and living NOW - making good memories NOW. Some are concerned we aren't facing the implications - we are. In the way that is best for us. Some think we are too worried about Parkinson's and it's "not a big deal," again, we're dealing with this as we can. We know the impact it is having in OUR situation.
I imagine there will be things said on the blog we will wish hadn't been shared. I imagine there will be silent days and weeks as we work through a few issues in private. Thank you for your care of us - simply pray and we'll share what we can as we can.
This has impacted our immediate ministry plans - but God KNOWS what is going on. He is NOT surprised. There is a REASON He breathed a passion for the nation of Japan into our spirits.
He is GOOD.